Registry Data Manager
Employer: Cystic Fibrosis Trust
Location: Flexible location of London office or home based
Temporary: Fixed Term Contract for 12 months
Working hours: Full time 35 Hours per week or Part time 28 hours per week
Salary: FTE £39,140 per year plus £3,000 London Weighting or £450 home allowance per year
Closing date: 23:59 on 2 March 2026
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This is an exciting opportunity for a Data Manager to join the internationally recognised UK Cystic Fibrosis Registry team.
The UK Cystic Fibrosis Registry is a database of consenting people with cystic fibrosis across the UK collecting demographic, clinical care, and health outcomes data from clinical teams in specialist centres. The Registry is a world-leading resource, the data from which is used to facilitate research, clinical trials, real-world evidence studies and quality improvement projects for the benefit of people with cystic fibrosis.
We are looking for someone with demonstrable experience of working with large observational data sets who can support the Registry with efficient data management and reporting processes. You will have a passion for working with healthcare data and the use of data to improve health outcomes.
With excellent communication skills, you will be able to communicate your work clearly and appropriately for a wide range of audiences and be able to deliver to agreed timelines.
You will join a busy, dynamic, collaborative team and work with colleagues and stakeholders both nationally and internationally. You will be passionate about supporting the Cystic Fibrosis Trust and uniting with us to make sure that everyone can live without the limits of cystic fibrosis.
Please note:
This is a fixed term contract for 12 months to cover maternity leave.
This role is subject to a satisfactory DBS check.
This is a UK based role and offers a flexible location; however, if you are London office-based, a minimum of 40% working hours per week in the office will be required and if you are home-based, travel to the London office will be required in line with business needs.
You will need to have the Right to Work in the UK before starting work with us and we will check this. In addition, we do not hold a Home Office Sponsorship Licence and therefore cannot offer visa sponsorship for any of our roles.
Our benefits
We offer a range of benefits including flexible working, 30 days annual leave plus recognised bank holidays (pro-rata for part time staff), contributory pension scheme, healthcare cash plan covering dental, optical, 24/7 GP service, employee assistance programme and opportunities for learning and development.
Closing date and interview date
Closing date for completed applications is 23:59 on 2 March 2026
Interviews expected 12 March 2026
We reserve the right to bring forward or extend the closing date if necessary. Therefore, if you are interested in this role, please submit your application as early as possible.
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