Programme Support Officer - Governance

Employer: Health Data Research UK

Location: This role is remote, however you need to reside in the UK. Requires attendance for at least two meetings in London per year.

Working hours: Full time

Salary: £36,000 - £42,000 (GBP)  

Closing date: 5:00pm, 24th Feb 2026 GMT

  • This is an exciting new role providing an excellent opportunity for someone who is looking to use and enhance their project management, organisational and communication skills, to support the Information Governance team in coordinating initiatives to harmonise and streamline data governance processes in the UK and beyond, with the aim of fostering trust and transparency.

    This fast-paced role will involve regular contact with senior internal and external stakeholders. The successful candidate will work across the entire organisation and will have regular contact with universities, funders, and governmental entities regarding complex data infrastructure and research projects.

    The successful candidate will share our values, have strong collaboration and organisational skills, be comfortable with working at pace and have a passion for professional, high-quality approaches to communication and engagement. The successful candidate will be part of HDR UK’s growing Legal, Trust & Ethics team and will report to the Head of Information Governance.

     

    Main responsibilities

    ·       Successfully planning and delivering stakeholder workshops, meetings, and events involving multiple organisations. Requires attendance for at least two meetings in London per year.

    ·       Providing updates on team workstreams, including producing PowerPoint presentations and a quarterly newsletter to stakeholders.

    ·       Disseminating HDR UK’s innovative work on health data governance, including drafting and contributing to blogs, bulletins, articles and other publications, and regularly updating webpages.

    ·       Coordinating funding calls and management of project timelines.

    ·       Supporting partners to adopt best practice in data governance including with overcoming challenges that have the potential to block or slow down research.

    ·       Engaging partners across the health data landscape and wider communities to develop and define best practice including resources and materials that can be adapted and re-used.

    ·       Working closely with our Public Involvement and Engagement (PIE) team to involve and engage members of the public, including HDR UK’s Public Advisory Board, in the use of health data for research and data governance.

    ·       Developing a strong network of working relationships with stakeholders within HDR UK.

    ·       Working with internal teams and external partners to horizon scan for opportunities to share successes that help raise the profile of our work.

    ·       Work flexibly to support colleagues as needed, adapting to an evolving environment and emerging priorities.

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