Lived Experience and Involvement Officer
Employer: Dementia UK
Location: Home based - Occasional travel will be expected with this role.
Working hours: 37.5 Hours per week
Salary: £33,000 - £35,000 per annum
Closing date: 05/07/2026
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Benefits:
enhanced maternity, paternity and adoption leave, and shared parental pay
family-friendly policies
8% employer pension contribution (Aviva)
life assurance cover at 3 x annual salary
health cashback plan (Medicash): employee cover plus up to four dependent children
24/7 virtual GP access (UK registered), plus access to Best Doctors
confidential employee assistance programme (Medicash)
access to a wellbeing app
flexible working options including hybrid working, flexible working patterns such as part-time, compressed hours, and more*
learning and development opportunities including bespoke training and access to LinkedIn Learning)
commitment to employee health and wellbeing. We have a Menopause Friendly accreditation and are a Disability Confident employer
At Dementia UK, we make sure families affected by dementia don’t face it alone. We know that the experiences of people living with dementia, their families and carers are vital in shaping the support we provide and the decisions we make.
We are looking for a Lived Experience and Involvement Officer to join our growing team. This is a newly created role and an exciting opportunity to help shape how lived experience is embedded across Dementia UK.
Working closely with the Lived Experience and Involvement Manager, you will help grow and support our Lived Experience Advisory Network, building strong relationships with people affected by dementia and ensuring their voices help shape our work.
You will coordinate involvement activities, support engagement and communications, and help evaluate the impact of lived experience across the charity. You will also play a key role in developing new resources, processes and ways of working as we continue to strengthen our approach to involvement.
We are looking for someone with excellent communication and organisational skills who enjoys working with people and building relationships. You will bring experience of involvement, engagement or participation work, alongside the confidence to use your initiative, develop new ideas and help establish effective ways of working. Personal experience of lived experience involvement, whether through work, volunteering or personal experience, would be particularly valuable.
Our cultureIn addition to offering a competitive salary and a generous benefits package, we truly value our people. It’s important for us to create a workplace culture that looks after our people to support them in achieving their full potential. You will become part of a diverse and dedicated team who are supported to use and develop their skills. We recognise and value the key role you will play in delivering our strategic plans for the benefit of those living with dementia.
Our staff have a voice. Representatives from different roles and levels across the organisation lead and positively contribute to our working groups around health and wellbeing, menopause, and equity, diversity and inclusion.
Our supportive and nurturing workplace culture has recently earnt us recognition as the Sunday Times Best Place to Work in the non-profit and charities sector 2025 (big organisation).
Dementia UK is proud to welcome everyone. We aim for a truly inclusive culture with talented, diverse teams that represent a variety of backgrounds, perspectives and skills. We celebrate differences and individuality and encourage everyone to feel comfortable being themselves at work.
By applying to join Dementia UK, you acknowledge that in the event you are successful for the role, any offer and your ongoing employment will be conditional on you having or obtaining the right to work in the UK.
*Please note that any decision on flexible working is based on business needs
We expect this role to attract high interest and may close it before the advertised closing date. To avoid disappointment, we recommend submitting an application at your earliest opportunity.
When you apply for a job at Dementia UK, we will collect certain information about you to process your application and assess your suitability for the role. Further details can be found in our privacy notice.
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