Information, Knowledge, and Support Adviser
Employer: UCL
Location: This post is offered on a remote first basis. There may be occasional attendance at regional/central London events which may involve evenings and Saturdays.
Temporary: The post is available immediately and funded by a donation from The National Brain Appeal until 31 March 2028 in the first instance.
Working hours: The role is offered part-time, 0.6 Full Time Equivalent (29.1 hours per week); Monday, Tuesday, Wednesday are the preferred working days but there may be occasions where flexibility is required due to meetings/events.
Salary: £43,981-£52,586
Closing date: 29-Jun-2026
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About us
The UCL Dementia Research Centre (DRC), based in the Department of Neurodegenerative Disease and led by Professor Nick Fox, is a hub for clinical research into various forms of dementia. Our work focuses on identifying and understanding the disease processes that cause dementia, the factors that influence these disease processes, and how best to support people with dementia and their families. In addition to our research, we also provide a cognitive disorders clinic within the National Hospital for Neurology and Neurosurgery.
Rare Dementia Support (RDS) is a UCL-led collaborative service offering specialist social, emotional and practical support services for individuals living with, or affected by, a rare dementia diagnosis. Our vision is for all individuals with, at risk of, or supporting someone with one of these forms of dementia to have access to information, tailored support and guidance, and contact with others affected by similar conditions. RDS is provided by the UCL Dementia Research Centre (DRC) at the Queen Square Institute of Neurology and the National Hospital for Neurology and Neurosurgery – where the post is based – and partners, and funded by The National Brain Appeal.
About the role
You will contribute to the work of the Rare Dementia Support (RDS) direct support team providing advice via support calls and in-person at the new Rare Dementia Support Centre (RDSC) by supporting people living with atypical, inherited, and young onset dementias, their carers, their families, and their friends, and professionals and practitioners working to support them. This role includes the opportunity to shape and direct special projects related to the development of new support groups, professional training, or patient and public involvement/engagement (PPI/E), in line with the activities of RDS and the wider Dementia Research Centre.
The role is offered part-time, 0.6 Full Time Equivalent (29.1 hours per week); Monday, Tuesday, Wednesday are the preferred working days but there may be occasions where flexibility is required due to meetings/events.
The post is available immediately and funded by a donation from The National Brain Appeal until 31 March 2028 in the first instance.
Interviews are likely to place in the afternoon of Monday 20th July.
A full job description and person specification for this role can be accessed below. To apply, please upload a current CV, complete the online application form, and use the supporting statement section or upload a cover letter to outline how you meet the essential and desirable criteria for the role. Please do not upload any additional attachments as these will not be considered by the selection panel.
About you
You will have an Honours degree (or equivalent) in a relevant health-related discipline and experience delivering pre-, peri-, and post-diagnostic rare dementia support. Extensive and expert knowledge of atypical, inherited, and young onset dementias, and up to date knowledge of the range of support available to people living with rare dementia and their families, and relevant aspects of the health and social care systems in the UK is essential.
A demonstratable understanding of, and ability to, manage the needs of patients with degenerative conditions, including the use of specific support skills and strategies as appropriate is also a requirement. You will also have excellent interpersonal, organisational, and communication skills, with the ability to communicate highly sensitive information to cognitively impaired and/or psychologically vulnerable people and their carers, who may have significant barriers to understanding or acceptance.
This role does not meet the eligibility requirements for a Skilled Worker Visa certificate of sponsorship under UK Visas and Immigration legislation. Therefore UCL will not be able to sponsor individuals who require right to work in the UK to carry out this role.
What we offer
Starting salary offered at UCL Grade 7 in the range £26,388.60 - £31,551.60 (i.e., 60% of £43,981 - £52,586) per annum including London Allowance.
As well as the exciting opportunities this role presents, we also offer great benefits, some of which are below:
41 Days holiday (27 days annual leave 8 bank holiday and 6 closure days)
Additional 5 days’ annual leave purchase scheme
Defined benefit career average revalued earnings pension scheme (CARE)
Cycle to work scheme and season ticket loan
Immigration loan
On-site nursery
On-site gym
Enhanced maternity, paternity and adoption pay
Employee assistance programme: Staff Support Service
Discounted medical insurance
Our commitment to Equality, Diversity and Inclusion
The Institute prides itself on operating in an all-inclusive environment irrespective of personal, physical, or social characteristics. Teamwork is highly valued, individual strengths are recognised and celebrated, and we are committed to advancing the careers of everyone. 12% of Institute staff are actively working on Equality, Diversity and Inclusion (EDI) initiatives; visit our EDI website for more information about our initiatives and priorities. The Institute also holds an Athena SWAN Silver award, in recognition of our commitment and demonstrable impact in advancing gender equality.
As London’s Global University, we know diversity fosters creativity and innovation, and we want our community to represent the diversity of the world’s talent. We are committed to equality of opportunity, to being fair and inclusive, and to being a place where we all belong.
We therefore particularly encourage applications from candidates who are likely to be underrepresented in UCL’s workforce; these include people from Black, Asian and ethnic minority backgrounds, disabled people, LGBTQI+ and gender diverse people in all roles, and women in Grade 9 and 10 roles.
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